How will my details be used by the Find Akkure Project?

As part of this study, Akkure Genomics may share only de-identified, individual-level data with qualified research collaborators or upload these data to a controlled-access database. This means you cannot be easily identified by others whom we may collaborate with in the future (researchers, scientists, etc.).

We built our systems with the privacy and security of our research participants at the center and we have a number of safeguards in place to ensure confidentiality. Data in the research computing environment are coded with a unique research ID.

There are always unknown threats in information security. Therefore, we cannot fully guarantee the security of your data. However, we constantly update our security systems and protocols to deal with new threats as they become known. We protect against known factors by applying industry practices in our information security procedures.

Akkure Genomics Research is performed in a secure computing environment with access restricted to research scientists and system administrators. Akkure Genomics servers are protected by technical, physical, and administrative procedures. Our servers are monitored for unauthorized activity. Your Genetic Information and sensitive account information, such as passwords, are encrypted, as are data transfers between our servers and your computer(s).

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